lunes, 18 de noviembre de 2013

First of two cases
With his 20 years of age, Yuleydi Féliz Jiménez is caught in a body of the elderly one of at least hundred years, and suffers from all the own ailments of a woman of this age. Already it does not walk and practically it does not have vision, his hands are deformed by the arthritis and almost it cannot use for if same.
This woman is the first one of two cases registered in Dominican Republic of a rare disease so called progeria. The progeria is a rare affection that is outlined because the symptoms are alike enough the human normal aging, but it happens in children that they age to a pace of eight years for cado one of life.
Adalia Rose


As the majority of the children and six-year-old girls of age, to Adalia Rose Williams likes to sing, to dance and to disguise. But unlike many of them, his innocent puzzles have turned her into one of the most famous girls into the network. At present it possesses almost 6 million fans in Facebook, a tray of entry fills of thousands of e-mails and hundreds of letters. All that is due to the rare disease that he suffers, called progeria, that is doing that his tiny body ages several times more rapid of the normal thing. The average of life of a patient like that is of only 13 years. The disease means that kg, almost the same thing weighs only 6 that his brother baby, Marcelo. The family, of Austin (Texas), cannot take the girl to the college because he needs constant attention.


Hayley Okines

In the year 2009 I document Okines's life, in a documentary of the television series "Extraordinary People", (known in Latin America like " The Only People ") trasmitido for National Geographic Channel. The chapter goes for name " Hope for Hayley ", here it appreciates him realizing a trip with destination to Boston, for his treatment. On December 5, 2010, it had a meeting together with the singer Justin Bieber, after a request of his followers in Twitter. Though Okines receives financial support to treat his disease in the United States, she has received the help of diverse branches of the sport, as the soccer team Chelsea Football Club, who realized a financial auction to his favor.



The Progeria

The Syndrome Hutchinson-Gilford (progeria) is a disease with small world frequency. It was described by the first time by Jonathan Hutchinson in 1886 about 65 cases being brought nowadays in the whole world. It is a genetic rare disorder that provokes premature aging. In the affected children, these children present symptoms typical of the oldness like the osteoporosis, the loss of the hair and the teeth, the cutaneous despigmentación and cardiovascular diseases. And the life expectancy shortened by a metabolic process that shoots ahead of the life, this way shortening drastically the life of the patient.